Yah, yah, it as been like forever since I posted – again. This time it is just cause –
I have been plugging along going to PE and swimming classes, trying to eat more and I have finally put on a few pounds – trust me this is a good thing. Mr Catfish and I have spent a lot of time reading in the afternoons and staying cool under the air. This week is going to be cooler YEAH and it is looking like maybe we will get some rain. If not, the lower night time temperatures are super good on me although a nice rain shower would smell wonderful to me right now.
KRP and I went to the new Goodwill and I tried to look for books and navigator around the store. Whoa – talk about too many oblivious to there surrounds people Yikes! I got trapped in the middle of one isle and no matter what way I tied to go so huge person or someone with a cart popped up in front of me and boxed me in. I was about to go nuclear when KRP found me a shoved her way to me and rescued me. Seriously it was totally unbelievable.
In the middle of the isle on a shelf there was 6″ a poly-stone pelican. I was holding on to it at the time KRP saved me and he kind of grew on me.
So, I now own pelican statue – it cost me a whole 66cents – I think it should have been 99 but the gal rung up 66 – without a decimal point who’s to argue?
I made the mistake of telling my PCP ( I like my PCP) that my eye was still all wonky. She made a same day appointment with the eye Dr. What the heck this is not new hello? I guess the staying that way for three months since the last time I saw her umm … anyway.
The eye Dr did all the test that eye docs do and while I sat there blinded by the room light because my eyes were dilated he decided that I might do a steroid drip deal? I am like ugh why? It is not like this just happened and my understanding it is more helpful if done early on not months into the deal and doing so will not change the outcome right? Just speed up a recovery. Yes and possibly and talk it over with your neuro etc. . So I say NO. Then he decided that I need an MRI with contrast urgently – OK??? I gave up and came home knowing what I already knew DUH optic neuritis . …
Now I am still trying to decide if I want a MRI with Contrast – don’t get me wrong the MRI only brings on slight claustrophobia, more so with the full closed tube deal but the idea of having something shot into my blood the gando something or other while stuck in the tube – now that sort of scares me – a lot. Ok back to train of thought . … I get a call from my neurologists office to make an appointment ASAP. WT? come on now I have not gotten into see you in over a year because the auto appointments were messed up I guess, I see I have an appointment scheduled by you all in DEC. why now?
So, after refusing to go to an appointment at 10:15 this morning because I have PE and an hour notice is not exactly spiffy for me. The office calls back and says how about Friday? So I have an appointment scheduled for Friday. Now really I am thinking what is going on surely this big drive for now now now must be based on something other than my eye? So, I wrote my neurologist and she emailed back that yes I was correct about the steroids, that she did not get the urgency either other than the eye Doc thinks that I am having a worsening of my MS symptoms based on what is going on with my eye and that he requested she see me soon.
Ok whatevers – kind of another DUH I think – my MS symptoms getting worse that is and I might add that no one has seemed to give a diddle doo about it but me. Who ever was suppose to take my docs load when she was out on maternity leave dropped the ball and left me hanging.
So, I figure if I gotta go into a tube, get filled full of the contast chems, I want some cool pics of my spine also. What fun are brain pics without the spine? I had a few brain lesions and a spine full of lesions last time I want the spine LOL the film pics/slices are way cooler to look at if I have the spine ones to go with em. So, being the brat that I am I emailed back and mentioned that most of my lesions where in my spine, that my Lhermitte electrical zaps drive me nuts and never go away, that how about doing the spine also? We shall see.
Strange how when you want an MRI no one will do one and when you could not care less . … well at least that is my experience. I am getting better at this I suppose, that part where I try not to let the doctor opinions over rule my own opinions on how I feel or what does or does not work in my own body.
Alright enough venting about docs but I rather be stuck in the isle sometimes over dealing with em.
Will they actually do your brain and spine at the same time? I had to make 2 separate appointments, and I really tried to fight it. Good luck with the results.
Peace,
Muff
I dunno but the neuro said she ordered a spine one also :).
She just said that it depended on the radiology dept. schedule.
I think more than likely it will be two appts. because the little MRI they use for the spine scans cost less to operate than the large one they use for the contrast scans. I wonder why if it was the same machine they would have to make two appts? My first brain and spine where done with the same machine but were ordered at different times.
I am getting resigned to having the contrast one done in the big closed tube. Yah here the cluck cluck of the chicken?
Jan
Ack, there’s a Value Village near here where the women are downright vicious. I quit going there some time ago. About MRI pics, I keep meaning to do something artistic with them. You know, like over-pixelate or texturize and add color. Not sure what I’d do then.
Good luck with the docs. I can’t say much except that a good deal of them have reserved seating in hell. But don’t mistake me for bitter or anything :0
Donna
You could always replace either the black or the white so a photo showed through. A twist of my brain on drugs – make a series choosing your favorite ( and beautiful photos) of places you have been. A tribute to your survival and spirit.
Or a sixties flash back full of color . …
Blow one up and throw darts at it – do not ask how I know this but hit the tumor(lesion in my case) you get to light a photo of your least favorite Dr on fire as a reward?