MS

Rejuvenation Needed

I got into the bath the tube of orange colored gel promised to rejuvenate – oh boy I need rejuvenating! The contents are a pretty bright orange color and the fragrance citrus. Dang if it was not nice but I fear I have not rejuvenated a bit.
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The kitchen make over left me zapped. One more cupboard to empty and redo the shelf paper etc. Amazing what lurks in the dark corners. Where did this mug, spice, bowl, or other misc. thing come from? Yawn.
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I am suppose to make an appointment with my PCP, first I need to get the usual blood work done, make the appointment, blah blah blah . … my health insurance is under my partners policy. The company was recently bought out by a much larger one (largest? now in the USA in its field) anywho – a new health card came – only one, mine. My HMO number, my name, and partners birth date. You may note, partner got no card. Called the new employer human resource dept – and they so could not get that we were not trying to cancel a person but get the member card correct. I am thinking request new cards from HMO might be faster route? Ok, the HMO says the only reason a new card would be issued was if the patient info changed – ummm I am thinking the employer changed my birth date – duh! So, now we wait to see if I get another new card signaling that the employer made the correction -AUGH.
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The point is that I was hoping to use this as an escape from doing the vampire tests and making the appointment that I don’t want to go to anyways. Tee hee. I am not in the mood to hear what I already know or have figured out or something new for that matter. Maybe next week. My list is long.
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Maybe if I took 26 pills like Montel I would be rejuvenated? Only I have trouble swallowing one pill at a time. God knows I don’t want to suffocate! My hug is always there sometimes worse than others but after spending a lot of time convincing myself that it would not stop me from getting air – along comes this Dr. Oz, I was not going to say anything about this but Montel . … his dang kitchen looks bigger than my downstairs so I have trouble boo hooing with him. Some say any publicity is a good thing but incorrect info? We sure need a rejuvenation of MS spokespersons eh? Oprah is so rich that I guess getting the facts right on her national show is a low priority.
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Keeping Busy – sort of

Not much new around here but I figured I had better type something before you all thought I had disappeared again.

Went to my neurologist appointment yesterday – not sure why I had one? it was made by the doctor.  I guess I am suppose to check in.  I don’t really see the point I guess unless I have a specific problem or question.  Most questions get the dunno or could be responses LOL  I appreciate that the doc does explain things, answer questions, and has no problem saying “dunno”.  I have more problems with the right leg now – duh – and got a prescription for neurontin (gabapentin).

I did bring a list of questions and sort of understood most of what she said.  I will have to email to clarify some things that kind of flew by my mind and I am such a pain in the arse when my other half says “no she said this not that”, especially when it is something I did not wish to hear. I think she said she was leaning towards I was in a secondary stage but the other half is not sure either -s0?  She was very ok with my not wanting to try the disease modifying drugs, in fact, she said if I were younger  she would push them, but, because of my age and other factors she was not inclined to.  While I was in the building I had my scheduled blood work done and got a flu shot – ouch!   I am such a sissy.

I started a new page here on the blog to keep track of what I have been reading.  I started a table to enter the info in. It now depends upon my remembering to add the titles as I finish each book. Ummm – we shall see . …

I have a few friends that I borrow and loan books with.  I get a back and loan a bag. I most enjoy the books I purchase over the borrowed because I love to read in the bath tub.  I just can’t bring myself to take the chance of dropping someones  book into the water.   I did give my mom all the Nevada Barr paperbacks so my collection is a few books smaller.  I know I should just go to the library but – well I have no good reasons really other than I like having my own books, hardbacks are hard for me to hold at length, and I read fast and don’t like returning them.

Well off to play with wordpress child themes again – I might use one  here too – they are a sure way to not have files overwritten by updates  and stifles the  screaming  when an errant stroke of the key or flight of the mouse sends code into lah lah land .  Then I am off to whine some more about my sore arm from the shot and start another book.

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Christmas Brought a Cane

Yesterday I visited the Physical Medicine and Rehabilitation doctor and had an evaluation appt with a physical therapist. I don’t know what I expected from these appointments and I was not exactly sure why I even had them made for me. Just lost somewhere in the doctor office visit fog I get.

At the first appointment I was knocked with a funny looking round hammer that looked kind of like a popsicle. Then the usual questions that doctors often ask. This is where my mind starts to wonder. I am not sure where it goes but somewhere along the way I usually start losing track of the point of the conversation. Why is he asking that? What does that mean? After a few trys at comprehension and concentration my mind usually zones out to parts unknown.  Thank God my significant other is there to keep track of it all and able to later on patiently explain to me what was said and what it maybe all meant.

My over all focus honed in on a theme of my fading abilities concerning mobility. Buzz words clueing me in that the conversation was not going the way I invisioned where danger of falling, balance, muscle atrophy and . … well when going to a pool and doing excercises in the water came up my total aversion to pools and water – I am not a get in a bathing suit and jump in type gal – I flashed and hooked onto my thoughts of your telling me I should not walk without support cause I will fall and hurt myself yet you want me to get in a freaking water filled pool and not drown? Needless to say my mind went else where. My logic is that I am walking so leave me alone and I there is not way in hell I am getting into a dork bathing suit with stupid little foam deals on my arms in order to excersise in freaking water!

The next appointment with the physical therapist was much the same except he got that I was not gonna use a old ladies walker nor go swimming.  I think he also got that I would do any and all land exercises that he gave me. What I finally got into my pea little brain was that maybe everyone else was right and I was wrong – oh gasp! so I gave in and took a cane. I suspect much of this decision was based on wanting to cooperate and not fall over. I still believe that the longer I can get around on my own the better off the world is. But, I am not stupid – slow processing info – yes, find it hard to write a coherent way – yes, tire easy – yes, lose of balance – yes, . …

I am not trying to be an a$$ but I have spent a lot of time soaking in all this crap about MS and you know what? The bottom line is there is no set path, not guarantees of what will work or not work. No way to tell when I wake up if I have a good balance day or a bad balance day, if my right eye or my left eye will see right, if I can type or not that day – woo hoo – it is Christmas everyday.

So, yes I am stubborn because sometimes it is all the control I have.

Now I seriously need to find a cool cane. Maybe flames? dogs? emmm …